- There are at least 8 different types of known Porphryias. The
Porphyrias are charactierized by three major findings: photodermititis, neuropsychiatric
complaints and visceral complaints. Where do you get answers about this Illness? Go to some of our
favorite links listed below.
Veriegate
Porphyria http://www.emedicine.com/DERM/topic450.htm
Porphyria cutanea tarda
- MCS---Porphyria connection
- Redefinition of Abnormal Susceptibility to Environmental Chemicals.
- Study of Gonadotropin-Releasing Hormone Analogues in the
Prevention of Cyclic Attacks of Acute Porphyria in Women
- PORPHYRIA A PATIENT'S GUIDE ACUTE PORPHYRIA - DRUG LISTS - DIAGNOSIS - MANAGEMENT & THERAPY
-
-
- Case Study 2: Porphyria Cutanea Tarda,
Robin L. Travers, M.D. http://med-amsa.bu.edu/Derm/docs/resident/case2.htm
- Information about Medical Test
- International Directory of Laboratories
for the Biochemical Diagnosis of Porphyria
- Shelly's Porphyria University
- A site dedicated to educating people about Porphyria,
- Acute Intermittent Porphyria, and their rights and
responsibilities as patients.
Cheryl Ann's Porphyria Page -- Site contains Porphyria Chat Room, and many links to other
porphyria sites.
http://users.imag.net/~wipeout/
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- Index Mara's Porphyria Page
-
PORPHYRIA
PLACE
-
- Author: Diana Deats-0'Reilly
- Written for patients, their family and friends and primary care physicians.
-
- MEDIC: CLINICAL HANDBOOK:
- Coproporphyria
- Acute Intermittent porphyria
- Porphyria cutanea tarda And Hepatoerythropoietic porphyria
- THE PORPHYRIAS
- Ed Friedlander, M.D., Chairman, Dept. of Pathology
- University of Health Sciences, MO -- March 24, 1994
-
- Drug information
MORE LINKS
http://wsrv.clas.virginia.edu/~rjh9u/aip.html
| MULTIPLE CHEMICAL
SENSITIVITY |
AMERICAN ACADEMY OF ENVIRONMENTAL MEDICINE
Environmental Medicine?
The specialty in medicine in which doctors assist patients in uncovering the cause and effect relationship between their
environment and their ill-health, and help them learn to avoid those inciting factors is called Environmental Medicine.
- Clear information about Multiple Chemical Sensitivity,
in 1994, testing showed that over 90% of MCS sufferershave developed a condition known as
Disorders of Porphyrinopathy (an acquired form of the porphyrias). The porphyrias are a
group of rare metabolic, enzyme deficiency disorders involving the production of heme (a
component of blood) and liver and/or bone marrow damage and has many symptoms in common
with MCS. The most significant symptom MCS shares with the porphyrias is chemical
intolerance/sensitivity, and any estrogen mimicking chemical or drug can trigger an
attack.
-
- is a grass roots effort to educate on the
chemicals used and the health effects of fragranced products. This is a no frill site with
emphasis on information.
-
- What's happening on the West Coast and Links on MCS and Environmental Issues.
- How does your State rate Environmentally
- Porphyria Share - Prayer and Chat
- Porphyria Chat Room
Scheduled Chat Every Wednesday
At
7 p.m. PST, 8 p.m. MST, 9 p.m. CST, 10 p.m. EST
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