- There are at least 8 different types of known
Porphyria. The Porphyrias are characterized by three major findings: photodermititis, neuropsychiatric
complaints and visceral complaints. Where do you get answers about this Illness? Go to some of our
favorite links listed below.
Definition of Porphyria fron the National Digestive
Disease Clearing House
The Official Patient's Sourcebook on PORPHYRIA
-
Variegate Porphyria http://www.emedicine.com/DERM/topic450.htm
Porphyria, Variegate
Neonatal-onset hereditary
coproporphyria with male pseudohermaphrodism
DIAGNOSING THE PORPHYRIAS
-
Porphyria cutanea tarda
-
- MCS---Porphyria connection
- Redefinition of Abnormal Susceptibility to Environmental Chemicals.
- Study of Gonadotropin-Releasing Hormone Analogues in the
Prevention of Cyclic Attacks of Acute Porphyria in Women
- PORPHYRIA A PATIENT'S GUIDE ACUTE PORPHYRIA - DRUG LISTS - DIAGNOSIS - MANAGEMENT & THERAPY
-
- Information about Medical Test
Information on testing.
Testing for Toxic Metal- and Chemical-Induced Porphyrinuria
- International Directory of Laboratories
for the Biochemical Diagnosis of Porphyria
PRESCRIBING DRUGS FOR PATIENTS WITH PORPHYRIA
PORPHYRIA
PLACE
-
- Author: Diana Deats-0'Reilly
- Written for patients, their family and friends and primary care physicians.
-
- THE PORPHYRIAS
- Ed Friedlander, M.D., Chairman, Dept. of Pathology
- University of Health Sciences, MO -- March 24, 1994
-
- Drug information
MORE LINKS
http://wsrv.clas.virginia.edu/~rjh9u/aip.html
Professional Referral
Network http://www.healthy.net/clinic/refer/index.html
ATSDR - ToxFAQs
MULTIPLE CHEMICAL
SENSITIVITY
A Canary's Eye View
-
P450 Enzymes and the Porphyrias
- Clear information about Multiple Chemical Sensitivity,
in 1994, testing showed that over 90% of MCS sufferershave developed a condition known as
Disorders of Porphyrinopathy (an acquired form of the porphyrias). The porphyrias are a
group of rare metabolic, enzyme deficiency disorders involving the production of heme (a
component of blood) and liver and/or bone marrow damage and has many symptoms in common
with MCS. The most significant symptom MCS shares with the porphyrias is chemical
intolerance/sensitivity, and any estrogen mimicking chemical or drug can trigger an
attack.
-
- is a grass roots effort to educate on the
chemicals used and the health effects of fragranced products. This is a no frill site with
emphasis on information.
-
- What's happening on the West Coast and Links on MCS and Environmental Issues.
-
- A recent breakthrough in the understanding of Gulf War Syndrome may be changing scientific thinking and promoting further
research on chemical synergy --- the toxicological impact of multiple chemical exposures..
- How does your State rate Environmentally
The Neurology Webforums at Massachusetts General Hospital
-- Porphyria
- Porphyria Share - Prayer and Chat
-
|
